Welcome. This site contains information, reflections and comments on various matters relating to my life with type 1 diabetes.
The 2018-19 theme for World Diabetes Day is the family and diabetes. The campaign is focused on raising awareness of the impact that diabetes has on the family and to promote the role of the family in the management, care, prevention and education of the condition.
I am very appreciative of not only the desire to understand but also willingness to support me in living with this condition, that both my immediate and wider family have shown over the years.
The Big “M” Blog No: 6
Step by step guide to how I chased one particular blood glucose spike resulting from a hot flush. From food eaten the previous evening, CGM trends and dosing decisions, I hope this will provide additional insight into the difficulties of managing type 1 diabetes and peri-menopause and my frustrations when I am sometimes told that it must be down to incorrect dosing for my evening meal.
The Big “M” Blog No: 5
If I sweat, must I be hypo? No!…. and knowing the best way to try to tame the resulting blood glucose spike following a hot flush has been a huge challenge. What works for me will not be right for everyone and it is only with the self-funding of CGM and the safety net of alarms that I have felt able to experiment.
The Big “M” Blog No: 4
My first awareness of changes to my insulin requirements in the morning came just over 10 years ago when my initial frustration with my daughter’s inability to walk in a straight line, on our way to junior school, suddenly became the realisation that she was not the one with the problem. I was having a hypo…..
The Big “M” Blog No: 3
One of the fascinating things to see on my peri-menopausal journey is how my overall background insulin requirements have been changing. There is a general downwards direction to basal rate doses but not in an ordered way. There are a lot of bumpy up and down movements around this general downwards trend that make identifying a basal rate that provides a good fit, a huge challenge….
The Big “M” Blog No: 2
As I approach the menopause, there have been days where I feel like I am starting over with a completely new diagnosis of T1. Patterns I had identified and the tried and tested techniques for managing them can no longer be relied upon. So what are the key changes I have found?
The Big “M” Blog No: 1
An article from Balance magazine in May-June 2006 entitled “All Change” stated: “Unsurprisingly, for women with diabetes, the menopause can be more complicated … you may notice that your blood glucose levels go up and down more than usual … you may also experience stronger and more frequent episodes of low blood glucose … sleep deprivation in turn causes further fluctuations in blood glucose levels and poor control.” So why have conversations about the menopause not been initiated by HCPs at my hospital appointments? Isn’t it time for this to change?
Continuous glucose monitors (CGM) for the management of type 1 diabetes first entered the market place in 1999. Improvements over the last 19 years now make them a very trusted method of managing the condition, yet they are still not routinely available on prescription. If you are a non-type 1, how do YOU feel? With the technology available, should the type 1 community not be given the same opportunity to improve how they feel?
“The language used by healthcare professionals can have a profound impact on how people living with diabetes…. feel about living with it day-to-day.” (NHS England - Language Matters: Language and Diabetes). My own experiences, both good and bad, wholly support this view.
Do your experiences at diagnosis contribute to how you manage a condition like type one, your future relationships with HCPs and your willingness to place your trust in their advice? This is a diary of events written by my mother at the time of my diagnosis.